...on Oct 17, 2015. So much for the ability, drive, motivation for consistency, and my Inner Breast Cancer B@d@ss...
I wonder if I had blogged regularly through this... whole thing, if I would have felt stronger...
...or if it would have drained me more.
I wonder if I had blogged regularly through this... whole thing, if I would have felt more sane...
...or if it would have made me crazier.
I wonder if I had blogged regularly through this... whole thing, I would have been able to avoid the current financial crises I find myself facing...
...or if I'm just *that bad* at the daily life stuff.
I wonder if I had blogged regularly through this... whole thing, reality would look more like the grand ideas in my head...
...or if I want to blame cancer because I am a dreamer, not a doer.
I wonder a lot of things. I would say I wonder how important my wondering even is, but I know from experience that making a difference, even to one person, it's important. It's not just important to that person, it's important to our community, our society. Not only do we "get back" what we "put out there," what we send out creates ripple, whether we witness them or not.
I want my ripples to look like smiles. I want my ripples to sound like sighs of relief. I want my ripples to feel like company.
And that can't happen sitting on my couch guzzling Candy Crush Saga. I'm not sure how it DOES happen, but it won't happen in the cocoon of a cell phone screen.
Showing posts with label Chemo. Show all posts
Showing posts with label Chemo. Show all posts
Wednesday, February 24, 2016
Monday, June 8, 2015
To Be Or Not To Be...
It kind of really is the question. Should I be "this thing" or this OTHER thing? Should I watch a show or play Diablo? Should I start planning classes or start writing a book? Should I get out of the house today or...?
Or stay inside like I have for months now? I remember having energy... I remember looking forward to *do things.* Anything. EVERYthing. Everything takes so much *energy.* There's a quote I included in my ScholarRevelationEntry that was supposed to inaugurate the "new" blog and it goes...
"I am an old scholar, better-looking now than when I was young. That's what sitting on your ass does to your face." ~Leonard Cohen
It's a nice sentiment. I don't think he's right. Not when I look in the mirror. Sitting on my ass is probably just... flattening my ass. The Invisible Scholar is just sitting here on her ass, stewing in a lack of motivation and often overwhelming lethargy. Just last night, all of the amazing, strong women of Spokane's 2015 "Listen to Your Mother" got together again to celebrate our experience this year. I didn't go. I spent all day holding myself and everything together and just... had no happy left to share at the end of the day. Little desire to celebrate something that now feels like a lifetime ago. I've lived a lifetime in less than a month, it seems.
That statement is rather self-pitying. And false. And self-indulgent. I could only be so lucky as to live *my* lifetime of experiences in less than a month. I've had some pretty damn awesome experiences.
Some of them even occurred on this couch that is currently hosting my ever-more-flattening ass. So the answer, then, is "to be." To be what? My Inner Breast Cancer Badass asks a most important question. "Does it really matter," she whispers.
Or stay inside like I have for months now? I remember having energy... I remember looking forward to *do things.* Anything. EVERYthing. Everything takes so much *energy.* There's a quote I included in my ScholarRevelationEntry that was supposed to inaugurate the "new" blog and it goes...
"I am an old scholar, better-looking now than when I was young. That's what sitting on your ass does to your face." ~Leonard Cohen
It's a nice sentiment. I don't think he's right. Not when I look in the mirror. Sitting on my ass is probably just... flattening my ass. The Invisible Scholar is just sitting here on her ass, stewing in a lack of motivation and often overwhelming lethargy. Just last night, all of the amazing, strong women of Spokane's 2015 "Listen to Your Mother" got together again to celebrate our experience this year. I didn't go. I spent all day holding myself and everything together and just... had no happy left to share at the end of the day. Little desire to celebrate something that now feels like a lifetime ago. I've lived a lifetime in less than a month, it seems.
That statement is rather self-pitying. And false. And self-indulgent. I could only be so lucky as to live *my* lifetime of experiences in less than a month. I've had some pretty damn awesome experiences.
Some of them even occurred on this couch that is currently hosting my ever-more-flattening ass. So the answer, then, is "to be." To be what? My Inner Breast Cancer Badass asks a most important question. "Does it really matter," she whispers.
Sunday, April 5, 2015
Look Right Through Me
Menopause - /ˈmenəˌpôz/ - noun
the ceasing of menstruation; the period in a woman's life (typically between 45 and 50 years of age) when this occurs.
Okay. Well, that definition is pathetically simplistic. Let's try a medical dictionary.
Definition: Menopause represents the end of menstruation. While technically it refers to the final period, it is not an abrupt event, but a gradual process. Menopause is not a disease that needs to be cured; it is a natural life-stage transition during which women often make decisions about "treatment" options, such as hormone replacement therapies.
Now we're getting somewhere. That one reads more like the opening of a conversation. Unfortunately, it's a conversation, it seems, no one is having, not with any kind of full-disclosure honesty or in-depth exploration. Or maybe it's too complex and unique for a true conversation; I just don't know.
What I do know is that 3 months ago, one of my favorite nurses at CCNW looked at me and said, "Well, you are fully post-menopausal, so we don't need to do anything there." Uuuuhhhhhh, WHAT? Before chemo started, I wasn't even PRE-menopausal, and now, less than 4 months later, I'm fully POST! What the F@CK!?! Couldn't SOMEONE have thought to mention to me that my hormone levels were changing so drastically that I would be through menopause in record time? Maybe there's a meditation practice I could have done to ease the symptoms. Maybe some gentle yoga. A pill with no harmful interactions? SOMETHING? I thought I was *losing* my mind. I really, seriously thought I was going crazy and that I wasn't going to come back from it. At least if I had known it was menopause, I could have focused on the.... temporary nature of the mood-swings and physical changes. I figured my care team would KNOW to say something about it, but no one thought to say anything. No one thought to mention it. I felt so invisible that day. So trivial. Glossed over and unseen.
And now I'm going through it again. Not menopause (I don't think), but the great, invisible Phantom Nipple strikes, this time. The weight of misunderstood assumption is *so heavy.* I completely understand why anyone in their right mind would look at breast reconstruction following malignant breast cancer as a positive, celebratory thing. Maybe I'm not in my right mind (ha. ha. ha.) but it doesn't feel that way. I just hurt. Badly. Not as bad as I did after the mastectomy, but almost. And definitely more widespread. This pain is temporary, though, I know that. Who, (there's that phrase again) in their *right mind* WOULDN'T celebrate their return to looking "normal?" Apparently, not me. I am on my way to the full breast augmentation I have wanted for *years,* and I am not happy about it. And I don't know why. I'm sure I will be, eventually, but right now, in this moment, no.
There's a sense I get that many might think I am now on the road to "over;" that I am officially on the road to "recovery" with this first surgery. Maybe that's what's pissing me off, because I don't feel the "over" - the "recovery" - that so many seem to see. I still have Herceptin infusions through September. I still have many minor and at least one more major surgery between now and February of next year. I have Tamoxifen pills (the ones that will KEEP me post-menopausal) for a minimum of 5 years, or 10 years, if the current studies say 10 years is better. Maybe I'm pissed off because I can't seem to see this step like others do - for me, this is one of twelve thousand steps I simply never wanted to *have* to take, one of many pills I never wanted prescribed, one of many chemicals I never wanted injected, one of many surgeries I never wanted to have. I can't seem to find the "at least" in this, yet.
And underneath it all, every time a migraine sets in, or my damaged heart starts pounding too quickly and too hard, or my vulnerable lungs show the slightest sign of ache, I will have to fight the urge to beg for more tests - just to *make sure* IT hasn't come back somewhere else. Just to make sure I don't have to start this *hell* all over again. I now know, intimately, how much this experience sucks. And I can never *not know* that again.
Ignorance is bliss. And in this, I am not blissful.
(In honor of my dearly departed cousin, Ashley Carol, age 52, who passed away on Good Friday. Your pain is relieved, your fears are allayed, and your suffering is at an end. God speed and take care of you, "Sis." You've earned it.)
What I do know is that 3 months ago, one of my favorite nurses at CCNW looked at me and said, "Well, you are fully post-menopausal, so we don't need to do anything there." Uuuuhhhhhh, WHAT? Before chemo started, I wasn't even PRE-menopausal, and now, less than 4 months later, I'm fully POST! What the F@CK!?! Couldn't SOMEONE have thought to mention to me that my hormone levels were changing so drastically that I would be through menopause in record time? Maybe there's a meditation practice I could have done to ease the symptoms. Maybe some gentle yoga. A pill with no harmful interactions? SOMETHING? I thought I was *losing* my mind. I really, seriously thought I was going crazy and that I wasn't going to come back from it. At least if I had known it was menopause, I could have focused on the.... temporary nature of the mood-swings and physical changes. I figured my care team would KNOW to say something about it, but no one thought to say anything. No one thought to mention it. I felt so invisible that day. So trivial. Glossed over and unseen.
And now I'm going through it again. Not menopause (I don't think), but the great, invisible Phantom Nipple strikes, this time. The weight of misunderstood assumption is *so heavy.* I completely understand why anyone in their right mind would look at breast reconstruction following malignant breast cancer as a positive, celebratory thing. Maybe I'm not in my right mind (ha. ha. ha.) but it doesn't feel that way. I just hurt. Badly. Not as bad as I did after the mastectomy, but almost. And definitely more widespread. This pain is temporary, though, I know that. Who, (there's that phrase again) in their *right mind* WOULDN'T celebrate their return to looking "normal?" Apparently, not me. I am on my way to the full breast augmentation I have wanted for *years,* and I am not happy about it. And I don't know why. I'm sure I will be, eventually, but right now, in this moment, no.
There's a sense I get that many might think I am now on the road to "over;" that I am officially on the road to "recovery" with this first surgery. Maybe that's what's pissing me off, because I don't feel the "over" - the "recovery" - that so many seem to see. I still have Herceptin infusions through September. I still have many minor and at least one more major surgery between now and February of next year. I have Tamoxifen pills (the ones that will KEEP me post-menopausal) for a minimum of 5 years, or 10 years, if the current studies say 10 years is better. Maybe I'm pissed off because I can't seem to see this step like others do - for me, this is one of twelve thousand steps I simply never wanted to *have* to take, one of many pills I never wanted prescribed, one of many chemicals I never wanted injected, one of many surgeries I never wanted to have. I can't seem to find the "at least" in this, yet.
And underneath it all, every time a migraine sets in, or my damaged heart starts pounding too quickly and too hard, or my vulnerable lungs show the slightest sign of ache, I will have to fight the urge to beg for more tests - just to *make sure* IT hasn't come back somewhere else. Just to make sure I don't have to start this *hell* all over again. I now know, intimately, how much this experience sucks. And I can never *not know* that again.
Ignorance is bliss. And in this, I am not blissful.
(In honor of my dearly departed cousin, Ashley Carol, age 52, who passed away on Good Friday. Your pain is relieved, your fears are allayed, and your suffering is at an end. God speed and take care of you, "Sis." You've earned it.)
Thursday, March 19, 2015
The DMZ
I have been staring at a blank page for... ever, it seems. I have *so much* swirling inside me - churning, really - that I have the overwhelming, rather irrational, urge to throw up. It's as if vomiting would expel all of the retching, putrid filth inside, leaving me refreshed, energized, and above all, empty. Lighter. I would give anything to feel a gaping void where there is currently a roiling cesspool of anxiety. I'm not going to write about the myriad of issues pertaining to my current crisis, although my continually evolving relationship with cancer certainly contributes to this nausea. What sits like a rock in my gut is the crushing reality that there are *so precious few* in my life that do not have a major quantum shift taking place in their own worlds. I almost can't count the number of people I consider near and dear to my heart that are now in the midst of their own painful transformations, and it literally makes me sick to my stomach.
I suspect my turmoil might be a result of what can only be described as raging empathy emerging from my still-infant Inner Breast Cancer B@d@ss. I have become intimately familiar with raw, unbridled terror through this journey. It is a facet of everyday life. Now, though, many people I love the most must stare into the eyes of their own fearful beast. Just typing that makes my mouth water and my stomach turn. It really is harder to watch it happen than to live it. People shake their heads at me when I say that, but... well... they are wrong. I would rather live it any day of the week (and twice on Sunday) than sit meekly on the sidelines, powerless and impotent.
This empathy emerges, I think, from vivid memories of the worst of my meltdowns. I remember lying in bed at night, muscles rigid, trying to minimize my tremors so that Brian could sleep. Eventually, I would creep into the living room, curl up on the couch, and simply sob for hours. I worked so hard to keep the tiki mask in place. I couldn't let the people I love see me like that. It wasn't embarrassment. It wasn't a lack of trust. It was because there is so much pain and suffering in life; I could *not* add to their burden. In the dead of night, though, masks often get dislodged. Never before had I felt so helpless, so broken, so incapable of drawing another breath. There were times when I begged the fear to consume me; I longed for it to own me, to take away all control, so I could just let the current sweep me out to sea. Never in my life had I *not* believed in my ability to weather the worst. I knew me. I trusted me. I believed in me. Until this.
And again, I quell the urge to hurl. The gorge that rises in my throat, though, is not the floating scum of my own terror. It is the helplessness I feel knowing that many I love are now taking those same steps. Their story may be different than mine, but the result is the same ~ same, same, but different, all f#ck!ng over again. I know they are trying their damnedest to lie still at night, so others can sleep. I can feel them sneaking into their living rooms to rage and cry where no one can hear, even if only metaphorically. They are shaking and quaking on the inside while desperately trying to keep the tiki mask in place to protect the ones *they* love, because they see no other option.
But they are wrong, just as I was wrong. There is another option. They are not the first, and certainly will not be the last, to traverse the shadowy landscape of fear. They are a very few among so many that have fought and will fight these battles, time and time again. A single soldier, though, cannot win a war; it takes an army. So just in case someone reading this is standing in the middle of their own personal combat zone shivering and weeping and scared shitless, I thought I'd remind you; I've been through basic training, and I am still standing. I may not be a battle-hardened warrior (just yet), but I have stared down the most evil of demons and the scariest of enemies, and I have a lot of fight left in me, yet. You don't have to walk this alone. You don't even have to ask. I am here, if you want, and I will cross this minefield with you. It would be my honor.
And my salvation.
Just as long as we get to stop, sometimes, so I can throw up.
I suspect my turmoil might be a result of what can only be described as raging empathy emerging from my still-infant Inner Breast Cancer B@d@ss. I have become intimately familiar with raw, unbridled terror through this journey. It is a facet of everyday life. Now, though, many people I love the most must stare into the eyes of their own fearful beast. Just typing that makes my mouth water and my stomach turn. It really is harder to watch it happen than to live it. People shake their heads at me when I say that, but... well... they are wrong. I would rather live it any day of the week (and twice on Sunday) than sit meekly on the sidelines, powerless and impotent.
This empathy emerges, I think, from vivid memories of the worst of my meltdowns. I remember lying in bed at night, muscles rigid, trying to minimize my tremors so that Brian could sleep. Eventually, I would creep into the living room, curl up on the couch, and simply sob for hours. I worked so hard to keep the tiki mask in place. I couldn't let the people I love see me like that. It wasn't embarrassment. It wasn't a lack of trust. It was because there is so much pain and suffering in life; I could *not* add to their burden. In the dead of night, though, masks often get dislodged. Never before had I felt so helpless, so broken, so incapable of drawing another breath. There were times when I begged the fear to consume me; I longed for it to own me, to take away all control, so I could just let the current sweep me out to sea. Never in my life had I *not* believed in my ability to weather the worst. I knew me. I trusted me. I believed in me. Until this.
And again, I quell the urge to hurl. The gorge that rises in my throat, though, is not the floating scum of my own terror. It is the helplessness I feel knowing that many I love are now taking those same steps. Their story may be different than mine, but the result is the same ~ same, same, but different, all f#ck!ng over again. I know they are trying their damnedest to lie still at night, so others can sleep. I can feel them sneaking into their living rooms to rage and cry where no one can hear, even if only metaphorically. They are shaking and quaking on the inside while desperately trying to keep the tiki mask in place to protect the ones *they* love, because they see no other option.
But they are wrong, just as I was wrong. There is another option. They are not the first, and certainly will not be the last, to traverse the shadowy landscape of fear. They are a very few among so many that have fought and will fight these battles, time and time again. A single soldier, though, cannot win a war; it takes an army. So just in case someone reading this is standing in the middle of their own personal combat zone shivering and weeping and scared shitless, I thought I'd remind you; I've been through basic training, and I am still standing. I may not be a battle-hardened warrior (just yet), but I have stared down the most evil of demons and the scariest of enemies, and I have a lot of fight left in me, yet. You don't have to walk this alone. You don't even have to ask. I am here, if you want, and I will cross this minefield with you. It would be my honor.
And my salvation.
Just as long as we get to stop, sometimes, so I can throw up.
Monday, March 16, 2015
Let's Face It...
I'm lazy. Every time I get in this thing, it is glaringly obvious that the time between blogs keeps getting longer and longer. And it's always some version of the same ol' bullshit. "It's been awhile. I feel bad about that. I should look at that. Some other time ~ I have more important things to write."
But, do I? I have ideas. Goals. Wants. Needs. Desires. Lazy doesn't do any of those things any good; it doesn't bring them any closer. There are times to be lazy and there are times *not* to be lazy. Lazy is easier. It is quieter. It is less exhausting. Lazy is all kinds of things, but one of those things is *not* healthy. I cut off my left breast so I could be healthy again. I went to chemo every Friday for 12 weeks so I could be healthy again. I "willingly" instigated full-blown menopause at the tender age of 45 while in a *brand new* relationship so I could be healthy again. I am offended. I am insulted. I am disappointed by my laziness. I deserve more respect than that.
A wise man once said, “Reality denied comes back to haunt.” That is the truetrue. But a different wise man also said, "A person who has never made a mistake has never made anything." I am quite accomplished at mistake-making. I am so excited to see what is made of more recent mis-steps. But if the accomplishment of "making" something necessitates mistakes, (def. a act or judgement that is misguided or wrong) can you really call it wrong?
But, do I? I have ideas. Goals. Wants. Needs. Desires. Lazy doesn't do any of those things any good; it doesn't bring them any closer. There are times to be lazy and there are times *not* to be lazy. Lazy is easier. It is quieter. It is less exhausting. Lazy is all kinds of things, but one of those things is *not* healthy. I cut off my left breast so I could be healthy again. I went to chemo every Friday for 12 weeks so I could be healthy again. I "willingly" instigated full-blown menopause at the tender age of 45 while in a *brand new* relationship so I could be healthy again. I am offended. I am insulted. I am disappointed by my laziness. I deserve more respect than that.
A wise man once said, “Reality denied comes back to haunt.” That is the truetrue. But a different wise man also said, "A person who has never made a mistake has never made anything." I am quite accomplished at mistake-making. I am so excited to see what is made of more recent mis-steps. But if the accomplishment of "making" something necessitates mistakes, (def. a act or judgement that is misguided or wrong) can you really call it wrong?
Saturday, March 14, 2015
Oh, To Be Behind The Camera
I haven't been on here. Again. I'll explore it, I will. I promise. There's something more immediate I want to process. Isn't there always.
Whatever, so anyway...
We took portraits yesterday. We had this idea awhile back that a zombie picture shoot would be cool - it would be fun - with a healed mastectomy scar surrounded by way-too-much-left-to-prepare-for-the-reconstruction skin, we could make some *sick* looking wounds. And we had limited time - mere months - because the reconstruction surgery would take away this unique opportunity.
Well, time flies. The surgery is April 2nd, 2 weeks and 5 days away. In preparation, we started brainstorming other themes we might want to include that might take advantage of my soon-to-change-again chest. If nothing else, it would be a treat. It wasn't initially planned to explore breast cancer and its impact, in my mind, we were doing it to take advantage of a unique and soon-to-disappear physical state that now rules my daily life. The more we talked, the more I came to see, though, that the themes that really attracted me were more than simple fangirl infatuation. The themes we settled on were zombie, warrior (duh, isn't every cancer diagnosee a warrior?), and steampunk. Steampunk was my idea. I love steampunk. It fascinates me. It inspires me. It excites me. Steampunk, to me, is a literary genre born of creativity and genius and innovation... and necessity and desperation and often last recourse in the face of adversity. And it was discussing this piece - and the accompanying, self-written essays that will be read when (hopefully) this photo shoot becomes an exhibit - when all the pieces of this shoot fell together in my head. From diagnosis on June 30th, 2014 to sometime in August (before I began research on my treatment options); that was my Zombie phase. I couldn't think. I couldn't reason. I couldn't communicate. I couldn't do anything but go where I was directed and do what I was told to do. All someone had to do was make the right noise, and I would follow along in a haze. If you don't get that reference, you should try "the Walking Dead;" it's a great show.
The second phase was my Warrior phase. She's exhausted. The Warrior made all of the decisions about surgeries and treatments. The Warrior got out of bed every Friday for 12 weeks to go to the chemo suite for 5 to 6 hours. The Warrior got up every day (almost every day) and went to work. The Warrior had to make the command decision to stop lecturing in class because she couldn't get from point A to point B in her lectures coherently, much less intelligently. The Warrior counted the days until she could take off her armor and put down her sword and simply be. Like I said, she's exhausted.
The third phase, which I am now heavy in the middle of, is the Steampunk phase. This is a time of reinvention, of improvisation, of ingenuity. I don't *have* to reinvent myself; I am choosing to reconstruct post-surgery Stacy into something new. It's exciting, enticing, intoxicating. Sure, it's a bit nerve-wracking, but how many people get the opportunity to consciously orchestrate the definition of themselves? We are all doing it with every action, every decision, every stumble, and every fall, but it happens without really noticing, if you think about it. I can't *not* think about it. I COULD choose not to act, but I would have to conscious miss appointments. I would have to actively refuse treatment. I would have to look at one breast in the mirror every day and be reminded that I had opted out of reconstruction. I am doing none of those. I am going to write and speak and recover my way into a new expression of me. And because of opportunities like Listen To Your Mother - Spokane, 2015, the ongoing creation of documenting my experience on film with a brilliant former student - and now, dear friend - Mikayla Daniels, a wonderful photo shoot made real through the efforts of many special people, and other project still in their infancy, the potential exists for many people to hear my story and watch it unfold. What more could an educator want?
To not be in front of the camera, that's what. To sit in the relative safe space behind the lens and watch someone else do this. I am beginning to see what many have intimated to me in various ways - it's a bit unsettling to share so much. It's a bit unnerving. I have always chosen to leave myself exposed, knowing I could weather any resulting storms. I would like to say this is no different, but... the Warrior is *so* tired. Who am I to ask her to continue marching bravely into these storms? I think she really wants this to all be over. It's sitting behind the Warrior's eyes in the portraits, almost like she's pleading with me. Just let it be done.
"If you wish for peace, prepare for war." Thanks, Flavius. In the Warrior's defense, she may be exhausted, she may have taken a knee temporarily, but she's been repairing her armor and sharpening her weapons while in this eye of the storm. Tired doesn't mean done. Wiser? Yes. Slower? Absolutely. Experienced? For sure. Grayer? Hehehehe, yes. But done? Not by a long shot. It makes me sad to acknowledge all of that, but happy would be incomprehensible without sadness as its reflection.
Whatever, so anyway...
We took portraits yesterday. We had this idea awhile back that a zombie picture shoot would be cool - it would be fun - with a healed mastectomy scar surrounded by way-too-much-left-to-prepare-for-the-reconstruction skin, we could make some *sick* looking wounds. And we had limited time - mere months - because the reconstruction surgery would take away this unique opportunity.
Well, time flies. The surgery is April 2nd, 2 weeks and 5 days away. In preparation, we started brainstorming other themes we might want to include that might take advantage of my soon-to-change-again chest. If nothing else, it would be a treat. It wasn't initially planned to explore breast cancer and its impact, in my mind, we were doing it to take advantage of a unique and soon-to-disappear physical state that now rules my daily life. The more we talked, the more I came to see, though, that the themes that really attracted me were more than simple fangirl infatuation. The themes we settled on were zombie, warrior (duh, isn't every cancer diagnosee a warrior?), and steampunk. Steampunk was my idea. I love steampunk. It fascinates me. It inspires me. It excites me. Steampunk, to me, is a literary genre born of creativity and genius and innovation... and necessity and desperation and often last recourse in the face of adversity. And it was discussing this piece - and the accompanying, self-written essays that will be read when (hopefully) this photo shoot becomes an exhibit - when all the pieces of this shoot fell together in my head. From diagnosis on June 30th, 2014 to sometime in August (before I began research on my treatment options); that was my Zombie phase. I couldn't think. I couldn't reason. I couldn't communicate. I couldn't do anything but go where I was directed and do what I was told to do. All someone had to do was make the right noise, and I would follow along in a haze. If you don't get that reference, you should try "the Walking Dead;" it's a great show.
The second phase was my Warrior phase. She's exhausted. The Warrior made all of the decisions about surgeries and treatments. The Warrior got out of bed every Friday for 12 weeks to go to the chemo suite for 5 to 6 hours. The Warrior got up every day (almost every day) and went to work. The Warrior had to make the command decision to stop lecturing in class because she couldn't get from point A to point B in her lectures coherently, much less intelligently. The Warrior counted the days until she could take off her armor and put down her sword and simply be. Like I said, she's exhausted.
The third phase, which I am now heavy in the middle of, is the Steampunk phase. This is a time of reinvention, of improvisation, of ingenuity. I don't *have* to reinvent myself; I am choosing to reconstruct post-surgery Stacy into something new. It's exciting, enticing, intoxicating. Sure, it's a bit nerve-wracking, but how many people get the opportunity to consciously orchestrate the definition of themselves? We are all doing it with every action, every decision, every stumble, and every fall, but it happens without really noticing, if you think about it. I can't *not* think about it. I COULD choose not to act, but I would have to conscious miss appointments. I would have to actively refuse treatment. I would have to look at one breast in the mirror every day and be reminded that I had opted out of reconstruction. I am doing none of those. I am going to write and speak and recover my way into a new expression of me. And because of opportunities like Listen To Your Mother - Spokane, 2015, the ongoing creation of documenting my experience on film with a brilliant former student - and now, dear friend - Mikayla Daniels, a wonderful photo shoot made real through the efforts of many special people, and other project still in their infancy, the potential exists for many people to hear my story and watch it unfold. What more could an educator want?
To not be in front of the camera, that's what. To sit in the relative safe space behind the lens and watch someone else do this. I am beginning to see what many have intimated to me in various ways - it's a bit unsettling to share so much. It's a bit unnerving. I have always chosen to leave myself exposed, knowing I could weather any resulting storms. I would like to say this is no different, but... the Warrior is *so* tired. Who am I to ask her to continue marching bravely into these storms? I think she really wants this to all be over. It's sitting behind the Warrior's eyes in the portraits, almost like she's pleading with me. Just let it be done.
"If you wish for peace, prepare for war." Thanks, Flavius. In the Warrior's defense, she may be exhausted, she may have taken a knee temporarily, but she's been repairing her armor and sharpening her weapons while in this eye of the storm. Tired doesn't mean done. Wiser? Yes. Slower? Absolutely. Experienced? For sure. Grayer? Hehehehe, yes. But done? Not by a long shot. It makes me sad to acknowledge all of that, but happy would be incomprehensible without sadness as its reflection.
Tuesday, December 2, 2014
Terrified Celebration: The Reality of an Oxymoronic Existence
"Today" (Monday, even though it's Tuesday on the calendar - I haven't slept yet - it's still today) I showed up at Cancer Care Northwest's south office for my final chemotherapy treatment. It's been awhile since I blogged, and I've beat myself up about that. I - we - are taking another step into more undiscovered country, though, and I just can't stay away any longer. I started this blog with the idea to chronicle my search for my inner breast cancer b@d@ss from then on, but it has been sporadic, to say the least. It has been approximately (exactly) 137 days since that first blog, and there are 7, total. That has bothered me. Often and intensely. Yes, the blogging and the FaceBooking was and is for my emotional health, first and foremost, but I am - at heart - an educator and a story-teller. So many have helped me along the way that I feel it's important to tell my story so maybe women - and men - who walk this road in the future might benefit from the steps I have taken - good or bad. It's how we learn, as a species, from our history, both macro and micro. I also took vows as a Buddhist to dedicate my meditation practice and my life to doing my bit to ease the suffering of all sentient beings. If the Buddhist belief in reincarnation is really the "way it works," the Bodhisattva vow also includes the promise that, should the vow taker achieve enlightenment, they will still chose to come back and work again to alleviate the suffering of all. My vow was my promise to God that I would be the best person I could be for as long as I am allowed so that my and others suffering is just a bit less because I lived - that's the goal, anyway. Really, I can't not tell my story. It occurs to me, though, as I begin this entry with the goal of blogging every day of my post-chemotherapy life until further notice (for a variety of reasons that include guilt), that I should go a little easy on myself. I am, after all, one of those sentient beings I vowed to ease the suffering of, if at all possible. If every living creature on this planet deserves kindness and compassion and the easing of their suffering - and I hold this idea as my dearest, universal Truth - I *have* to acknowledge that *I* am one of the deserving. And that hurts to say. I want so desperately to *believe* that statement, and it is *so* difficult. But that doesn't change the Truth that I deserve the same respect I give others. It does *not* change that Truth. It doesn't. But I so wish it didn't make me cry and feel like I need to keep repeating it to make it a little more true.
Anyway, in respect of the fact that I deserve relief from suffering, I am beginning a quest to view my sporadic blogging is *not* a negative thing (I will have to keep reminding myself this for some time, I'm thinking). It is a natural thing, really. Even in the best of times, dedication to the recording of your life is not an easy undertaking mentally, emotionally, or logistically. And it has its own time and place. Unless someone wants to chronicle their entire life, there are times when regular, frequent blogging just shouldn't happen. That's a whole different kind of crazy that gets movies made about them. Looking at the indescribable impact steroids have had - and are still having - on my emotional control, mood swings, sense of self worth, faith in myself, anger threshold, and pretty much anything else you can think of that involves *moods,* combined with the impact "chemo brain" has had, continues to have, and will continue to have for the foreseeable future on my ability to do my job easily, to organize the many spheres of my life, and pretty much anything else you can think of that involves traversing the *busy* that is daily western life, blogging with any kind of frequency would have been... well, I want to say unhealthy, but if I'm being honest, it would have been self-abusive. And if I saw anyone I knew attempting that while going through what I've experienced over the last three months, I would have literally sat on them to make them take a break and rest themselves. That means I deserve the leniency, if everyone else does too, right? I so wish it didn't make me cry and feel like I need to keep repeating it to make it a little more true, though.
So I allowed myself that time to rest. In fact, I didn't feel guilty about resting when I needed to, because I KNEW I needed to recover well so that I didn't end up extending my healing exponentially. Now that I can see the mending beginning and I am not trapped in the... mental and emotional... hell that chemo sometimes has been, I feel strangely guilty that I didn't blog more. I've been wishing I had recorded more of the crazy I experienced. But I have to believe that if I had been capable of recording it, I would have. During these meltdowns, every ounce of energy was spent not losing what little hold I had on my sense of stability and sanity. Don't get me wrong, this wasn't a daily experience, but there were enough of them and they were close enough together that they filled in the few empty cracks left by the steroid-chemo brain train wreck. I deserved it the breaks; the rest. And it's nice that it hurts a little less to say that now, because I believe it a little more.
(Sidenote - it is so interesting how the point of a blog often emerges rather differently than expected and it is so fun when it happens. It's happening right now :-)
My Ego wants to add that there were often days where I felt decent. Like, really decent. Decent enough to get things done - with work, with my sons and grandchildren, with my writing contract, with the oh-so-fun vintage eBay store, with my boyfriend of almost a year - who has walked *every step possible* with me, with my videos I want to make for my history classes, the fiction I've started and never finished. The steroids and chemo brain often leave me unable to complete complex thoughts and tasks, but it wasn't 100% difficult 100% of the time. Instead, though, I would often watch tv or play Diablo or some other leisurely, unproductive activity. There were times I could have been "working," but instead, I was playing. But my Ego is often unfairly hard on me - everyone's is, if you think about it - and it was doing it again. Don't I deserve to have some fun, I mean, even if I *wasn't* going through chemo, EVERYONE deserves fun, right? If that is true, then so do I, regardless of chemo. I prioritized my classes first, and beyond that, all work and no play makes Stacy so much sicker. I deserved the play time. And it hurts a little less to say that now, because I believe it a little more.
And so the purpose of tonight's blog was to help me let myself off the hook for the things I seem to feel I *should* have done, which really is simply a false statement. Because I *did* do what I was supposed to. I took care of myself as best I could so that I could start getting better as soon as possible. Even when I slipped and worked too long or stayed up too late, I always came back to taking care of myself. I deserved it. I still deserve it. Saying that makes me smile. Right now, I have little trouble believing it :-).
postscript: I have been watching "Sisterhood of the Travelling Pants" for the first time ever while writing this entry. The scene playing while writing that last paragraph was in a store where one of the four main teenage girl characters is making a documentary with the help of a 10 year old girl. The main character just found out the girl is dying of leukemia. Normally, the main character is rather irritated by the girl, but today, she's asking her to help her with one more interview. The girl figures out that the main character learned her secret and looks at her and says, "Are you asking me to help you with the film because I have leukemia?" Thoughtful, delayed response - "Maybe." The girl thinks about it and smiles a little. "Okay."
:-)
Anyway, in respect of the fact that I deserve relief from suffering, I am beginning a quest to view my sporadic blogging is *not* a negative thing (I will have to keep reminding myself this for some time, I'm thinking). It is a natural thing, really. Even in the best of times, dedication to the recording of your life is not an easy undertaking mentally, emotionally, or logistically. And it has its own time and place. Unless someone wants to chronicle their entire life, there are times when regular, frequent blogging just shouldn't happen. That's a whole different kind of crazy that gets movies made about them. Looking at the indescribable impact steroids have had - and are still having - on my emotional control, mood swings, sense of self worth, faith in myself, anger threshold, and pretty much anything else you can think of that involves *moods,* combined with the impact "chemo brain" has had, continues to have, and will continue to have for the foreseeable future on my ability to do my job easily, to organize the many spheres of my life, and pretty much anything else you can think of that involves traversing the *busy* that is daily western life, blogging with any kind of frequency would have been... well, I want to say unhealthy, but if I'm being honest, it would have been self-abusive. And if I saw anyone I knew attempting that while going through what I've experienced over the last three months, I would have literally sat on them to make them take a break and rest themselves. That means I deserve the leniency, if everyone else does too, right? I so wish it didn't make me cry and feel like I need to keep repeating it to make it a little more true, though.
So I allowed myself that time to rest. In fact, I didn't feel guilty about resting when I needed to, because I KNEW I needed to recover well so that I didn't end up extending my healing exponentially. Now that I can see the mending beginning and I am not trapped in the... mental and emotional... hell that chemo sometimes has been, I feel strangely guilty that I didn't blog more. I've been wishing I had recorded more of the crazy I experienced. But I have to believe that if I had been capable of recording it, I would have. During these meltdowns, every ounce of energy was spent not losing what little hold I had on my sense of stability and sanity. Don't get me wrong, this wasn't a daily experience, but there were enough of them and they were close enough together that they filled in the few empty cracks left by the steroid-chemo brain train wreck. I deserved it the breaks; the rest. And it's nice that it hurts a little less to say that now, because I believe it a little more.
(Sidenote - it is so interesting how the point of a blog often emerges rather differently than expected and it is so fun when it happens. It's happening right now :-)
My Ego wants to add that there were often days where I felt decent. Like, really decent. Decent enough to get things done - with work, with my sons and grandchildren, with my writing contract, with the oh-so-fun vintage eBay store, with my boyfriend of almost a year - who has walked *every step possible* with me, with my videos I want to make for my history classes, the fiction I've started and never finished. The steroids and chemo brain often leave me unable to complete complex thoughts and tasks, but it wasn't 100% difficult 100% of the time. Instead, though, I would often watch tv or play Diablo or some other leisurely, unproductive activity. There were times I could have been "working," but instead, I was playing. But my Ego is often unfairly hard on me - everyone's is, if you think about it - and it was doing it again. Don't I deserve to have some fun, I mean, even if I *wasn't* going through chemo, EVERYONE deserves fun, right? If that is true, then so do I, regardless of chemo. I prioritized my classes first, and beyond that, all work and no play makes Stacy so much sicker. I deserved the play time. And it hurts a little less to say that now, because I believe it a little more.
And so the purpose of tonight's blog was to help me let myself off the hook for the things I seem to feel I *should* have done, which really is simply a false statement. Because I *did* do what I was supposed to. I took care of myself as best I could so that I could start getting better as soon as possible. Even when I slipped and worked too long or stayed up too late, I always came back to taking care of myself. I deserved it. I still deserve it. Saying that makes me smile. Right now, I have little trouble believing it :-).
postscript: I have been watching "Sisterhood of the Travelling Pants" for the first time ever while writing this entry. The scene playing while writing that last paragraph was in a store where one of the four main teenage girl characters is making a documentary with the help of a 10 year old girl. The main character just found out the girl is dying of leukemia. Normally, the main character is rather irritated by the girl, but today, she's asking her to help her with one more interview. The girl figures out that the main character learned her secret and looks at her and says, "Are you asking me to help you with the film because I have leukemia?" Thoughtful, delayed response - "Maybe." The girl thinks about it and smiles a little. "Okay."
:-)
Tuesday, August 5, 2014
Discipline
Why has it been so hard, I wonder, to get back in here and do this blogging thing. I *wanted* to share this experience. I *needed* to share it. It's been days and days and days since I blogged. I publicly wondered why on FB yesterday and received a variety of honest and creative answers. None of them were right, I've decided. It's because I don't have the discipline. Anymore, it feels like I used all of my "let's get this sh!t done" ability in graduate school. I would like to say I know that isn't true, but if the last 4 or 5 years or so is any indication... Well... 3 or 4, I guess. I used to say it was time, or lack thereof. I never have the "time" for whatever it is that I'm not doing, in that moment. Lie, lie, lie. Discipline would have made the time - or at least provided a more honest answer. The universe gave me all the time I need weeks ago. Well, three weeks ago, to be exact. Full right radical mastectomy at 45 in a *very young* (at the time-blog for another day) relationship. All the time in the world, it gave me. So THIS is the lesson in this, eh? Discipline and dedication? Ugh. It was so much more entertaining having so many things going on that I could flit from one thing to the next, never staying in one place too long - especially never long enough to *finish* the thing. Ok... ok.... I get it. I'll slow down.
Really, it forced both of us to slow down (ok, short reference to that not-so-new-anymore-relationship). Maybe it saved us. Not that we needed saving, but on the flip side of that statement, doesn't everyone? One of many continually evolving results of this slow down? I've never felt this strong... this confident... this capable... or this attractive, actually. I've always known that, for me, confidence - appropriately placed and well-balanced - is sexy. I've also always considered myself a rather confident person, but I've never really felt "sexy." And I'm not going all base and carnal and instinct here. If I say someone is "sexy," I'm really saying they are... intriguing. Interesting. Engaging. Attractive, but DEFINITELY not just physically. Magnetic. Mysterious. If I call someone sexy, I'm admitting that they have a factor of "irresistible" for me that includes both inner and outer qualities. Basically, I guess I have to know someone before I can determine if I consider them "sexy" or not. I've never thought of myself that way. I've never felt that any of those words described *me.* Until recently. Maybe I'm finally getting to know myself a little bit. Or maybe I've engaged the ultimate self-esteem protective mechanisms~denial and delusion, and someday, maybe tomorrow, maybe next week, maybe next year, it will all come crashing down around my head, and I will look in the mirror, finally seeing the 'mutilated freak' that many have seen in their own post-mastectomy mirrors. It's a possibility. In some dimension, I suppose. But I've looked in the mirror *a lot* over the last three weeks. I've taken pictures and looked at them. I've even zoomed in to see the changes up close. And unless I've *always* been a mutilated freak and just never known it, that's just not what I see. I see me. And I like what I see.
I know many women who have had to go through a mastectomy would not agree. And that's perfectly fine. I do hope not to be judged by any of my new BC family, but it could happen. I grabbed the "mutilated freak" phrase from a breast cancer discussion board. A post-surgery woman wrote something to the effect of, "of course I am wearing a prosthetic until I can have the reconstruction - I would *never* leave the house looking like a mutilated freak..." I have chosen not to wear a prosthetic. I will have a reconstruction, when it is medically feasible, but... I'm almost going to miss this step - this stage. I like me more now than I ever have in my life. But if my breast wasn't part of my self-esteem calculation before surgery, it shouldn't be now, either. Basically, it shouldn't matter what my chest looks like or if I have the reconstruction. Hmmmm. I like looking at it that way.
But that still leave thousands - maybe hundreds of thousands - of women out there that are *not* comfortable with how they look post-boob-removal. I'm not even going to speculate on that. There are *so* many reasons for that, and none of the reasons are really my concern. I did read an article recently, though, that got me thinking about this issue of body, health, and self-esteem. At Salon.com, I ran across an article called "You Don't Have to Dance at Your Mastectomy." It's about an OB/Gyn who asked her OR - and the entire nation - to dance with her for 5 minutes before laying down on the operating table to have a double mastectomy. As the author points out, it's the kind of feel-good, oh-I-could-never-be-that-strong-but-thank-god-someone-is kind of story that eventually makes it way onto Lifetime or the Sundance Channel, inspiring reporters covering to quippingly ask "What do you do before a double mastectomy? Dance, of course!" The author's response to that answer? "Blow me."
I can definitely see how most people would not dance into *any* surgery involving the word cancer. But I can also see how some would. I might even venture to say "have to." But just as a dancing mastectomy shouldn't worry about how others in similar situations behave, shaking, scared, crying mastectomies shouldn't compare themselves to the dancers. I'm willing to bet~largely based on personal experience~that the dancers have their own hidden demons, they are just different than the ones that make you shake and cry and freak out in the face of cancer. They are the demons that make some people dance, instead. But don't let them fool you. They are still demons.
http://www.salon.com/2013/11/08/you_dont_have_to_dance_at_your_mastectomy/
Really, it forced both of us to slow down (ok, short reference to that not-so-new-anymore-relationship). Maybe it saved us. Not that we needed saving, but on the flip side of that statement, doesn't everyone? One of many continually evolving results of this slow down? I've never felt this strong... this confident... this capable... or this attractive, actually. I've always known that, for me, confidence - appropriately placed and well-balanced - is sexy. I've also always considered myself a rather confident person, but I've never really felt "sexy." And I'm not going all base and carnal and instinct here. If I say someone is "sexy," I'm really saying they are... intriguing. Interesting. Engaging. Attractive, but DEFINITELY not just physically. Magnetic. Mysterious. If I call someone sexy, I'm admitting that they have a factor of "irresistible" for me that includes both inner and outer qualities. Basically, I guess I have to know someone before I can determine if I consider them "sexy" or not. I've never thought of myself that way. I've never felt that any of those words described *me.* Until recently. Maybe I'm finally getting to know myself a little bit. Or maybe I've engaged the ultimate self-esteem protective mechanisms~denial and delusion, and someday, maybe tomorrow, maybe next week, maybe next year, it will all come crashing down around my head, and I will look in the mirror, finally seeing the 'mutilated freak' that many have seen in their own post-mastectomy mirrors. It's a possibility. In some dimension, I suppose. But I've looked in the mirror *a lot* over the last three weeks. I've taken pictures and looked at them. I've even zoomed in to see the changes up close. And unless I've *always* been a mutilated freak and just never known it, that's just not what I see. I see me. And I like what I see.
I know many women who have had to go through a mastectomy would not agree. And that's perfectly fine. I do hope not to be judged by any of my new BC family, but it could happen. I grabbed the "mutilated freak" phrase from a breast cancer discussion board. A post-surgery woman wrote something to the effect of, "of course I am wearing a prosthetic until I can have the reconstruction - I would *never* leave the house looking like a mutilated freak..." I have chosen not to wear a prosthetic. I will have a reconstruction, when it is medically feasible, but... I'm almost going to miss this step - this stage. I like me more now than I ever have in my life. But if my breast wasn't part of my self-esteem calculation before surgery, it shouldn't be now, either. Basically, it shouldn't matter what my chest looks like or if I have the reconstruction. Hmmmm. I like looking at it that way.
But that still leave thousands - maybe hundreds of thousands - of women out there that are *not* comfortable with how they look post-boob-removal. I'm not even going to speculate on that. There are *so* many reasons for that, and none of the reasons are really my concern. I did read an article recently, though, that got me thinking about this issue of body, health, and self-esteem. At Salon.com, I ran across an article called "You Don't Have to Dance at Your Mastectomy." It's about an OB/Gyn who asked her OR - and the entire nation - to dance with her for 5 minutes before laying down on the operating table to have a double mastectomy. As the author points out, it's the kind of feel-good, oh-I-could-never-be-that-strong-but-thank-god-someone-is kind of story that eventually makes it way onto Lifetime or the Sundance Channel, inspiring reporters covering to quippingly ask "What do you do before a double mastectomy? Dance, of course!" The author's response to that answer? "Blow me."
I can definitely see how most people would not dance into *any* surgery involving the word cancer. But I can also see how some would. I might even venture to say "have to." But just as a dancing mastectomy shouldn't worry about how others in similar situations behave, shaking, scared, crying mastectomies shouldn't compare themselves to the dancers. I'm willing to bet~largely based on personal experience~that the dancers have their own hidden demons, they are just different than the ones that make you shake and cry and freak out in the face of cancer. They are the demons that make some people dance, instead. But don't let them fool you. They are still demons.
http://www.salon.com/2013/11/08/you_dont_have_to_dance_at_your_mastectomy/
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